FLORIDA ADDS MORE MONEY FOR SENIOR CARE

As we all now know, after Hurricane  Irma fourteen elderly souls died because the nursing home in which they resided did not have a electricity after the storm.  As a consequence, they “overheated” and died.  Well, there is good news – the Florida Legislature and Governor have placed $37.1 billion dollars in this year’s fiscal budget to be used across six health care and social service agencies.

Florida’s medicaid program is the largest recipient at $29.2 billion and Children & Family Services receive $1.7 billion.  Those living in nursing homes will receive a 25% raise, from $105/m to $130/m. Nursing homes are now required to have generators with enough fuel to cool buildings during elongated power outages. The above monies are all coming from Florida taxpayers but my favorite part of the legislation is not tax based.

Starting this fiscal year, nursing homes (that receive medicaid dollars) will be paid on a set formula.  These providers must meet certain “direct patient-care” requirements as well as “quality of care” requirements.  In other words, if a nursing home only meets a minimum standard, they will be paid a minimum amount and given a set amount of time in which to bring the ‘home’ up to the formulaic standard.  As the homes hire more qualified staff and add amenities to its building and programs – they will receive larger payments.  As one law maker put it, they have to spend money, to make money.

As a senior’s advocate I’m thrilled that our state government realized how badly these “homes” were treating their patients.  Yet, it took senseless deaths to have a focus placed on how our greatest generation and aging or ailing baby boomers are treated when they can no longer treat themselves.  That is where we must be more vigilant.

As I write this, I cannot help but remember the 17 people who died very prematurely at Parkland High School.  And, yes, because of the deaths and the student’s activism we’ve put in some stricter state gun regulations.  Also many large gun sellers are now refusing to sell to anyone under 21.  Still, much like our senior citizens, why must it takes death to examine our mores and ethics.

THE PERILS OF HOSPITALS

HOSPITALS — once synonymous with a place to go when you’re REALLY sick is now the last place you want to be unless it’s prescheduled surgery with a doctor you trust.  If you’re elderly and/or on Medicare you are treated as a money machine — not a person.

Here’s how it works  . . . depending on how sick you are is how quickly you’re seen.  If you have an HMO or PPO assigned to your Medicare plan then everything is a predetermined price.  If you only have a medicare card then the patient becomes an ATM. This means that the nurses and techs will run as many

tests as reasonably possible (that insurance will pay).  The Doctor will review the chart for a “diagnosis” which, in my experience, is usually “inconclusive.”

The first time you go to the ER they will probably let you go home after the inconclusive tests BUT should you go back within 72 hours the hospital will admit you.  This is because the insurance companies won’t pay for a second ER visit without a diagnosis and admittance.

Now, here’s what is very important — you cannot let your elderly Mom, Dad and/or relative stay in the Emergency Room by themselves.  Here’s why — the administration will have them sign consent forms for numerous tests that do nothing except take up time.  Secondly, the treat them horribly!  Here is my story:

I took my 90+ Dad to his HMO doc.  He was having balance issues with other symptoms that portend  a stroke.  We rush to the ER and sit in highly uncomfortable chairs with all types of sick people.  After approximately 2 hours they call Dad into a “room.”  The medical techs hook him up to a glucose drip and leave the room.  For the next 3 hours he is taken from one machine to another for test after test. Because my Father is elderly he meekly goes where he’s told.  At the end of this interminable afternoon we receive an “inconclusive diagnosis” and he is allowed to go home.

Two nights later the same symptoms occur — my brother calls 911 and Dad is whisked off to the hospital.  I get home in time to follow the ambulance to the same hospital where we’d spent the afternoon.  I stay with my Father — they finally move him to an ER room and begin to do THE EXACT SAME TESTS they did 48 hours earlier.  I question every one.  It is now 1 am in the morning — I find blankets and sleep on the floor next to Dad’s bed because they are going admit him.  (Remember, if they don’t admit him the hospital won’t be paid.)  In every case, with every test, the results were the same as the ones 48 hours earlier BUT now the diagnosis is not inconclusive  . . . it’s we need more tests and observation.  After two days they allowed him to leave with the diagnosis of dehydration!

Bottom line, if you have an elderly parent or grandparent do not trust the hospital.  When either of my parents stay in the hospital overnight we hire a “babysitter”.  Yes, it costs money but your loved one doesn’t wake up to an empty room trying to figure out where he or she is.  Further, I check the chart constantly to see what is diagnosis and medicine is being used.  Truthfully, it’s like having a child — the difference, I’m grateful to be able to reciprocate what was done for me.

SENIORS SHOULD NEVER SUFFER . . . BUT THEY DO

This is an editorial to the Miami Herald written by H. Frances Reaves, Esq., President of Parent Your Parents,  in October of 2017.  This was written after Hurricane Harvey and Irma and the mirror placed on Senior Services. As we suffer through a very cold winter these words are still prophetic.

IF YOU HAVEN’T SEEN the video of the residents of a nursing home in Houston, Texas sitting in waist high water simply search “video of seniors in waist high water” in your browser – the You Tube video comes right up.   School children were evacuated, families were evacuated and who was left behind  . . . seniors.  Two weeks later, in the aftermath of Irma, 14 seniors die from overheating in a Broward County Nursing Home.

If these seniors had been children the outcry would have been much louder and punishment swifter.  An excellent example is the most recent earthquake in Mexico.  The school caved in on top of 24 children and four adults.  The volunteer rescuers were there within minutes and the TV crews transmitted  the entire search and rescue for more than three days.  That would not be the case if this had been a senior citizens facility.

Fariola Santiago wrote in her September 24th column that “the elderly are like children, frail, unable to care for themselves, and vulnerable to abuse and negligence.  Those who don’t have money or advocates and require round-the-clock care end up in places with deplorable conditions  . . .”  I agree with Ms. Santiago regarding the elderly but disagree that all nursing homes have deplorable conditions.  We also need to remember that, with the exception of one “lonely soul,” everyone had a family  . . . and the family did not take them from the ‘deplorable home’ even after they knew about the power failure.

Baby Boomers, Gen Xers and Millennials beware — you, too will be a senior!  Seniors, are an older version of who we are today. We espouse the sentiment that, “I only want to live a long life if I have a quality of life” but legally we don’t have a choice once our mind collapses.

What we don’t discuss is that dementia does not take away your intellect, mental pain or physical pain.  Dementia takes away the ability to communicate effectively.  It also absconds with your memory – which allows we the children to believe that with memory loss there is a loss of all senses.  That is not the case.  The 14 elders who died felt pain and the first to die truly suffered because they did not have the benefit of hospice care.

No doubt, the staff at this nefarious nursing home was negligent, incompetent and uncaring and they were allowed to function as “caretakers” for years.  It took a hurricane and power outage to bring it to light. Had this been a daycare center the negligence would not have been allowed to continue.

As the President of a company who advocates for seniors, finds resources, counsels families and assists in medicaid preparations, my experience shows that most of us face living in a medicaid facility.  Unless you have a healthy pension or half a million dollars you will not have the money for dementia care in a private facility.  Today that runs between six to seven thousand dollars a month.  If you qualify for medicaid, nursing homes run about $700.00 and  medicaid picking up the balance.

We must look in the mirror!  let’s begin the process of treating our elderly loved ones as our children.  Treat them as you treat those around you.  Hold the Assisted Living Centers and Medicaid Facilities accountable and — START SAVING!!

 

NOT ALL HOSPICE IS CREATED EQUAL

What is Hospice?  First, it is a type of care and philosophy that focuses on the palliation of a chronically ill, terminally ill or seriously ill patient’s pain and symptoms, as well as attending to their emotional and spiritual needs.   OK – so what is palliation?  Palliation is a service that makes you feel better even though it can’t cure you.

Hospice is a positive addition to our medicare system because the focus is the patient.  The goal is to keep each patient as comfortable as possible.  This means additional care over what your loved one is already receiving. Between nurses, social workers and priests, there is someone there two to three times a week to make certain there is no pain or discomfort.

The other side of this service is that it is run by medicare.  That means that Hospice is free if you’re in Medicare as most of our seniors are.   This also means not all Hospice providers are the same.  There are thousands of Hospice providers and you have to be certain that they are doing their job (much like those Medicare doctors I’ve described in earlier articles).

I’ve had two different patients in different facilities with different providers and the difference was night and day.  One provider is in a nursing home that accepts medicaid patients, we’ll call it A for purposes of this article. The other provider was for a client who lived in an assisted living facility – one that cost $4500/month.  This Provider is called F.

A little background – once a patient has been admitted to Hospice, its doctors, nurses and aides “rule” the care.  If the patient is a diabetic he or she will still stay on diabetes medicine but perhaps be taken off non-essential medication depending on the comfort level. Yes, the facility still feeds and provides a clean environment  but Hospice is in charge of the patients comfort.

In most nursing homes the patients are in full blown dementia but not necessarily at the end of their life physically.  Therefore, it is much more difficult to qualify for Hospice in a nursing home.  However, once the patient is accepted the care for my nursing home client was beyond great.  Her nurse was Mark and I could call anytime to check on her (once the children had given their permission)

The other client was in an Assisted Living Facility and qualified for Hospice before the children asked.  They had no indication he was in his last days, weeks or months.  Once their loved one  become uncomfortable and disoriented they started receiving a “run around.”  Parent Your Parents was asked to intervene.  Here’s what we found, the Assisted Living Center blamed it on Hospice and Hospice blamed it on the Assisted Living Center.  We started calling the Hospice office daily to ask for more help. Hospice told the children that babysitters were needed (at $20/hour).  That is when we went into advocate mode.  I reminded the Hospice company that their job was comfort and they had to start providing real comfort, not advice to the children and Assisted Living Center’s employees!  Remember these companies make money and paying people to babysit takes away from their bottom line.  The end result, this Hospice company did what they advertised and found a bed in an extremely lovely location where the client passed away comfortably and peacefully.

Bottom line – not all Hospice is created equal.